Empowering Patient Advocacy in Biopharma
With 15 years of experience, we provide strategic consulting to integrate patient voices into biopharma objectives, enhancing market access, diagnosis, and education for rare diseases, hematology, and oncology.
13
15
Years Experience
Drug Launches
Advocacy Leadership
Leading the narrative on patient advocacy as strategic partner. Each title contains a link to the article.
A discerning eye on biotech’s future reveals which companies will thrive through tough times - and which will merely survive. Most firms claim to put patients first, but those embedding authentic advocacy priorities don’t just serve communities - they secure long-term success. Patients aren’t just beneficiaries; they’re architects of progress. When led well, advocacy transforms from a support role into a strategic powerhouse. Three trends define this reality in 2025, with growing traction at leading firms.
When biotech and pharma companies weave patient advocacy into their strategic core, the impact goes beyond goodwill. With over 7,000 rare diseases touching 300 million lives worldwide - 95% without an FDA-approved treatment - the opportunity is critical. While some firms lean heavily on awareness campaigns and slogans, those that truly elevate patient advocacy into leadership unlock transformative benefits externally for communities and internally to achieve corporate goals.
Through strategic partnerships between patient organizations, healthcare professionals, policymakers, and biopharma, NBS has become a cornerstone of early diagnosis, saving countless lives and offering a model for biopharma to build lasting legacies. These collaborations, rooted in shared goals and mutual respect, demonstrate how patient advocacy, when prioritized, delivers transformative benefits for communities and companies alike.
Collaborating to Protect Access in Rare Hematology
A case study in how advocacy can bring together patients, providers, and payers to ensure appropriate access for the rare hematology community. This group requires specialized, coordinated care in an easily misunderstood treatment model.